My child has been diagnosed with autism: what next?

By NeuroVillage · Updated 26 October 2026 · General information for parents and carers

You do not have to solve everything on the day a diagnosis arrives. Start with the question that matters most to your family now, whether that is understanding the report, helping at school or making everyday life more comfortable.

A manageable starting point: keep the assessment report somewhere safe, write down your questions and choose one person or service to contact next.

Understand the report and follow-up

The NHS explains that an assessment report should describe the findings, strengths and support needs, and any other conditions identified. A follow-up appointment or care information may also be offered. Ask the assessment team to explain anything unclear.

Some questions you could take to that conversation:

  • “Which recommendations should we start with?”
  • “Are any referrals being made, and who will contact us?”
  • “Who should we ask if we need more help after this appointment?”
  • “Can you explain this part of the report in everyday language?”

These are suggested prompts, not a compulsory checklist. Read the NHS explanation of assessment results and next steps.

Talk to nursery or school

Request a conversation with the SENCO or the member of staff responsible for additional support. Describe the situations your child finds difficult and what helps. Bring the report if you want to discuss its recommendations.

Ask for a clear written summary of the support to be tried, who will organise it and when you will meet again. Our guide to nursery and school SEND support includes meeting preparation and local advice routes.

In England, an autism diagnosis does not automatically mean a child needs or qualifies for an EHCP. Our parent guide to requesting an EHC needs assessment explains the separate process and where to get independent advice.

Make everyday support personal

Ask your child about their preferences in the ways they communicate. Notice what they enjoy, when things become uncomfortable and which adjustments already help. A useful note for other adults could be: “This is what helps me; this is how I show I need a break.”

There is no need to buy a package of products or therapies immediately. Ask a qualified professional about your child’s particular communication, health or daily living needs. The NHS guide to supporting an autistic child covers practical support and services to discuss.

Check support for the whole family

You may want help with money, caring responsibilities or finding someone to speak to. Our benefits and financial support guide brings together official eligibility and application links. A diagnosis by itself does not establish entitlement to every benefit.

If you are waiting for an education decision, the council EHCP figures guide explains historical results and includes a polite progress email. Those figures cannot predict your own wait.

Keep the next step small

You could send one meeting request, organise your documents or write down your three main questions. You can come back to the other topics later. There is no schedule on this page that your family has to follow.

For an optional activity, explore free simple colouring pages or gentle learning games. These are recreation and learning resources, not treatment.

Compiled by NeuroVillage using the NHS sources linked above. This page offers general information and suggested discussion prompts; it is not individual medical, legal or benefits advice.

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